“I Don’t Want To Be Me Today”

Published July 15, 2016 by zuzusays

Handihelp Blog

Struggling Struggling Those were the words I whispered to my nurse in the shower this morning. I was in the midst of a panic attack which had started shortly after I woke up. Early on after my injury I had them all the time, but now I only get one or two a month. At the earliest signs I have learned to take the medication prescribed for them. Waiting, hoping it will go away only allows it to get more developed. Once the symptoms start, it’s just a matter of time. I’ve never been diagnosed with PTSD, but I have most of the symptoms. They usually begin with my legs. There is an overpowering, all-consuming urge to move them and at times, like today, that’s combined with the fact that they feel like solid cement. There are no words to convey the overpowering attitude that takes over my mind. These attacks…

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Dementia: enabling, inclusive and accessible

Published July 2, 2016 by zuzusays

From the viewpoint of someone with dementia –

Living Beyond Dementia™

Screen Shot 2016-07-02 at 8.27.31 AM

It appears even to me, I am too busy. My commitment to write a daily blog on my other website has failed miserably this year, and my goal to publish at least one per month here has just failed as well! Of course, this does not mean I am a failure!! I am so busy living beyond dementia, some things have simply had to be dropped, and blogging is one of them. Not that I will drop it completely, as find the conversations too interesting on both sites, and my recipe website is also one I occasionally still contribute to, but already has almost 300 recipes.

So, onwards and upwards through the ever so slightly increasing fog, I will contribute here today, so I don’t miss July, even though if I lived overseas, this may still be in June…

This month I want to talk about the term dementia friendly communities, and how…

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Saudi Arabia’s “Best Kept Secret”

Published July 2, 2016 by zuzusays

Interesting information and so glad that someone is calling for their Saudi Arabia’s removal from the UN Human Rights Council.

WE PERSEVERE: the Personal Blog of K.A. Ellis

The government of Saudi Arabia says with absolute assurance that there are no Saudi Christians in the kingdom of Saud.

But some nationals quietly worshiping inside the kingdom say otherwise; Christ is no respecter of earthly borders.

No Separation of Mosque and State

There is no separation of mosque and state in Saudi Arabia. The government follows a strict form of Islam called Wahhabism (or Salafism, to supporters). It claims to foster interfaith dialogue around the globe, yet within her borders she prohibits citizens from choosing any other form of religion. Her human rights abuses are notorious toward homosexuals, women, religious minorities, the press, and anyone else who expresses dissatisfaction with either the monarchy, or its particular expression of Islam.

The Saudi government is known for its inhumane treatment of government and religious dissenters, imprisoning and publicly lashing those who write and criticize its human rights abuses. One cannot even be a Saudi citizen if one is not a Muslim…

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The Times They Are A-Changin’

Published May 29, 2016 by zuzusays

Handihelp Blog

Those words are the title of the Bob Dylan song written in 1964 which has become a classic. The song discusses societal changes that were taking place. It covers a variety of new attitudes that were going to happen, Dylan believed, regardless of résistance. While the song says nothing about disability or the disabled community I would imagine it would be fairly easy for Dylan to add a verse today discussing societal changes happening towards individuals with disabilities.

Peta-Murgatroyd & Niles DiMarco Peta-Murgatroyd & Niles DiMarco Just this month (May 2016) we have seen three sign posts that I would present as examples of what is happening in our society today. The most recent would be the presenting of the Mirror Ball Trophy on Dancing with the Stars to Niles DiMarco, who won the championship despite the fact that he never heard a note of music the entire time. Niles was born deaf, but…

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Through No Fault of Our Own

Published April 27, 2016 by zuzusays

Rich is genuine and honest, a man of integrity and motivation. I admire his spirit.

Handihelp Blog

Within recent days I’ve received emails from several friends all struggling with the challenges presented to them by their disabilities. Of them, I am the oldest and I’m pretty sure I have been dealing with my disability the longest. I wish I could do something or make a potion that would make these challenges disappear. But, I know, as they do, that dealing with these crises is not that simple.
Andy and his grandson Andy and his grandson

Early on, after my injury, it was so important to me for people to understand that my injury was the result of an act of nature rather than a situation I had brought on myself by poor behavioral choices (i.e. Drunk driving). I didn’t want people thinking he got what he deserved. I was always grateful that my quadriplegia was the result of my pursuing an activity that I loved. Even though I was standing in…

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He’s Gone

Published March 28, 2016 by zuzusays

Every one of us who has to live with a major physical or mental change understands this. It’s so hard to let go…

Handihelp Blog

In 1957 a Rock& Roll group named the Chantels had a hit called He’s Gone. Part of the lyrics are below:
“He’s gone (he’s gone)
I don’t know where
But he’s gone (he’s gone)
I must have done something wrong
He is gone (he’s gone)

I’m sorry (he’s gone)
For what I’ve done
To make you leave me…”

To hear the song, click He’s Gone.

Yesterday was Easter Sunday. Marge and I decided to go down to Lake Ontario. There is a beautiful wheelchair accessible trail not far from our home. It was sunny and around 640. Lake Ontario is quite large and the vista is similar to being at the ocean. It always reminds me of how insignificant we are in the grand scheme of things and I love that. As I sat there looking out over the vastness of the water I had a strong reminder that…

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