All posts in the Uncategorized category

Among Heroes – Everyone’s Best Friend

Published January 23, 2019 by zuzusays

Chad Shipley

The amazing power of friendship and what it means to be a great friend. This podcast episode is a tribute to a person that I deeply admire and am inspired by. A role model that will help guide me for years to come.

And, a special tribute to my best friend, a person who has given my life so much great meaning, and someone who I had the pleasure of sharing a wonderful childhood with.

This episode holds a very special place in my heart. I hope that it touches any and all as much as the content that inspired it has touched me.

LINK – if reading via email

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The Struggle Within the Struggle

Published December 2, 2018 by zuzusays

Handihelp Blog

Most people have no idea what it is like to live with a disability. Every day is a struggle in itself. Some individuals are aware of the obvious challenges, most are unaware of the less obvious majority. I recently read that John McCain, whose range of motion had been severely limited by the torture he received while a prisoner of war in Vietnam, had to have another person comb his hair because he could not lift his arms above his shoulders.

Senator Tammy Duckworth Senator Tammy Duckworth

Many disabilities are visible at first glance. If the individual, when in public, presents well, seems to be in “control” and well-adjusted to their situation people often think to themselves, that’s wonderful or will say “Wow, I could never do that!” Neither could be further from the truth. First, anyone has all the abilities they need to deal with a severe crisis, already in each one…

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Don’t Give Up…. Don’t Ever Give Up

Published December 2, 2018 by zuzusays

This was the 25th year of the Jimmy V Foundation celebrated in our state and it seems like it was just last week that he gave this incredible speech. He’s still one of the most important coaches in a state that breathes college basketball.

Handihelp Blog

The other night, Wednesday 28, I turned on the television expecting to find a pre-game show for the basketball game between Syracuse and Ohio State. I enjoy watching Syracuse basketball and lacrosse and rarely miss a game. However, rather than the pre-game show ESPN was playing a tape of Jimmy Valvano’s acceptance speech for the inaugural ESPY Award. ESPY stands for Excellence in Sports Performance Yearly Award and it recognizes individual and team athletic achievement and other sports-related performance during a calendar year. The ESPY is also called the Arthur Ashe Courage and Humanitarian Award. Jimmy Valvano, for those of you who don’t know, was a young, flamboyant college basketball coach from the late 1960s through 1990. The high point of his career was when his team the North Carolina State Wolfpack defeated the heavily favored University of Houston Cougars in the NCAA Championship Game in 1983. I was inspired…

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This is my life with Alzheimer’s now

Published October 21, 2018 by zuzusays

Mina has an incredible ability to write clearly about her feelings about dementia while she experiences it very personally. Don’t miss reading her blog.

Suddenly Mad

This is life with Alzheimer_s - drawing of the twins Sarah Isabel and Michael Benjamin

My son’s wife gave birth to TWINS on Thursday, October 11, 2018. They are fraternal twins, and the boy is named Michael Benjamin, and the girl is Sarah Isabel. It’s a momentous event in the life of this family, but I have yet to see them. My son has sent a few photos, and this enabled me to do the drawing. I am aware that life is about generations, and that my time is passing quickly now. Alzheimer’s is speeding up the process. I will not know these twins as I would have if I were well. They will not know me. They will hear stories from their parents and maybe they will see pictures. I can’t be the normal grandma I would have been if this disease hadn’t come for me. I know that my daughter in law is a great mother, and my son is a great husband…

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Love at The Bitter End

Published June 30, 2018 by zuzusays

Suddenly Mad

Suddenly Mad- Love at the Bitter End - drawing of Mimi in the garden

Writing is a way of putting things in some kind of order. It’s the attempt to be seated in my soul and watch this thing, Alzheimer’s, unfold.

Thirteen days ago was Father’s Day. June 17, 2018. It was a beautiful sunny day. I photograph with my iPhone and took a snapshot of my daughter. The drawing was made by looking at that photograph. It doesn’t do her lithe beauty justice, but I tried to capture her likeness. She looks like her papa. Oblong face and and graceful long limbs.

Father’s Day. It was an emotional day. First my son arrived alone, without his wife and baby daughter. I felt so much love for him in that moment, as soon as I saw him and hugged him. On this day I was glad to have a few brief moments alone with him. When my daughter arrived, she presented a gift to…

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