Dementia and me

Published January 1, 2016 by zuzusays

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What the hell happened to my brain
Diagnosed with dementia when I was much too young
My children still at school
A deadly, terminal disease effecting
Memory, thinking, perception, judgment, language and speech

But worse than that, effecting my
Life, family, friendships, my sense of self, my identity
And a bucket load of guilt
Truckloads of stigma, discrimination and isolation
Loss of dreams, and grief
Sadness, disbelief, lost employment

And yet a new purpose of advocacy and activism
To bring about improved support and more respectful language
Stopping the blatant abuse of the most basic of human rights
Of people diagnosed with dementia, young or old
Fewer old friends, new global friendships

The role of educator
Teaching global lessons to academics and carers
Hoping for and seeking change
Searching for new ways for others
To discover we deserve the same as others with illness
Not involuntary restraint

Eventually locked away in secure…

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